Financing a Transplant

Financial Resources Directory

The following organizations may provide financial assistance to transplant candidates or recipients and their families. This is a sample listing and should not be interpreted as a comprehensive list or an endorsement. Ask your transplant financial team for the latest information or help.

Financial

AirLifeLine
50 Fullerton Court, Suite 200
Sacramento, CA 95825
Phone Number (800) 446-1231
Web Address: www.airlifeline.org
Transports ambulatory patients up to a distance of 500 to 700 miles using private pilots and their aircraft. Can transport people for transplant and follow-up appointments. Medical and financial need must be documented. Service is free of charge.

Air Care Alliance
4620 Haygood Rd.
Virginia Beach, VA 23455
Phone Number (800) 296-1217
Web Address: www.aircareall.org

American Kidney Fund
6110 Executive Blvd., Ste. 1010
Rockville, MD 20852
Phone Number (800) 638-8299
Web Address: www.akfinc.org

American Liver Foundation
75 Maiden Lane, Suite 603
New York, NY 10038-4810
Phone Number (800) 465-4837, (800) GOLIVER
E-mailwebmail@liverfoundation.org
Web Address: www.liverfoundation.org

Angel Flight
American Medical Support Flight Team
3237 Donald Douglas Loop South
Santa Monica, CA 90405
Phone Number (888) 426-2643
Web Address: www.angel-flight.org
Provides free air transportation on private aircraft for needy people with healthcare problems and for healthcare agencies, organ procurement organizations, blood banks and tissue banks. No fees of any kind. Volunteers serving the public since 1983.

Burkhead Foundation
P.O. Box 105723
Jefferson City, Missouri 65110
Web Address: www.burkheadfoundation.org

Children's Organ Transplant Association
2501 COTA Dr.
Bloomington, IN 47403
Phone Number (800) 366-2682

Fujisawa Patient Assistance Program
P.O. Box 221644
Chantilly, VA 20153-1644
Phone Number (800) 477-6472
Provides help on a one time only basis if the medication is available. For several of the drugs, the program replaces what has already been given to the patient.

Medicare Hotline
Phone Number (800) 638-6833

National Insurance Consumer Hotline
Phone Number (800) 942-4242

National Organization of Social Security Claimants' Representatives
Phone Number (888) 431-2804
Web Address: www.nosscr.org

National Transplant Assistance Fund
150 N. Radnor Chester Road
Suite F-120
Radnor, PA 19087
Phone Number (610) 535-6105, (800) 642-8399
Fax Number (610) 535-6106
E-maillsamson@transplantfund.org
Web Address: www.transplantfund.org

Nielsen Organ Transplant Foundation
Provides financial assistance to pre- and post-transplant patients in the NE Florida area.
580 W. 8th St.
Jacksonville, FL 32209
Phone Number (904) 244-9823
Web Address: www.notf.org

National Foundation for Transplants
1102 Brookfield, Ste. 200
Memphis, TN 38119
Contact: Janice Hill
Phone Number (800) 489-3863, (901) 684-1697
Fax Number (901) 684-1128
E-mailjhill@transplants.org
Web Address: www.transplants.org

Patient Education and Advocacy

These organizations may be able to provide patient education and patient advocacy services. This is a partial listing and should not be interpreted as a comprehensive list or an endorsement.

American Association for the Study of Liver Diseases
6900 Grove Rd.
Thorofare, NJ 08086-9447
Contact: Susan Nelson, Account Executive
Phone Number (609) 848-1000
Fax Number (609) 848-5274
E-mailaasld@slackinc.com

American Association of Kidney Patients
100 S. Ashley Dr., Ste. 280
Tampa, FL 33602
Contact: Kris Robinson, Executive Director
Phone Number (813) 223-7099, (800) 749-2257
Fax Number (813) 223-0001
E-mailAAKPnat@aol.com
Web Address: www.aakp.org

American Center for Transplant Resources
1512 Arboretum Dr.
Chapel Hill, NC 27514
Contact: Chuck Hutson, Executive Director
Phone Number (919) 932-7845
Fax Number (919) 932-7847

American Diabetes Association
1701 North Beauregard St.
Alexandria, VA 22311
Phone Number 800-DIABETES or 800-342-2383
Web Address: www.diabetes.org

American Heart Association
7272 Greenville Ave.
Dallas, TX 75231-4596
Phone Number (800) AHA-USA-1, (800) 242-8721
Web Address: www.americanheart.org

American Liver Foundation
1425 Pompton Ave.
Cedar Grove, NJ 07009
Contact: Alan P. Brownstein, President & CEO
Phone Number (973) 256-2550, (800) 465-4837
Fax Number (973) 256-3214
E-mailinfo@liverfoundation.org, abrownstein@liverfoundation.org
Web Address: www.liverfoundation.org

American Medical Association
515 N. State St.
Chicago, IL 60610
Contact: Reed V. Tuckson, MD, Group Vice-President
Phone Number (312) 464-5000
Fax Number (312) 464-4184

American Organ Transplant Association
3335 Cartwright Road
Missouri City, TX 77459
Contact: Ellen Gordon Woodall, Executive Director
Phone Number (281) 261-2682
Fax Number (281) 499-2315

American Share Foundation
6464 Dempsey Ave.
Van Nuys, CA 91406-6015
Contact: John S. Abbott, President
Phone Number (818) 781-1006
Fax Number (818) 781-4113
E-mailjsabbott@ix.netcom.com

American Society for Histocompatibility & Immunogenetics
P.O. Box 15804
Lenexa, KS 66285-5804
Contact: Debbie J. Elder, Executive Director
Phone Number (913) 541-0009
Fax Number (913) 541-0156
E-mailashiamp@aol.com

American Society of Minority Health and Transplant Professionals
P.O. Box 8324
St. Louis, MO 63132-0324
Contact: Tereasa D Parks-Thomas, President
Phone Number (314) 991-1661
Fax Number (314) 991-2805

American Society of Nephrology
1200 19th Street, N.W., Ste. 300
Washington, DC 20036-2422
Contact: Sherri A. Mara, Executive Director
Phone Number (202) 857-1190
Fax Number (202) 223-4579
E-mailSherri_Mara@dc.sba.com

American Society of Transplantation
National Office
236 Route 38 W. Suite 100
Moorestown, NJ 08057
Contact: Susan J. Nelson, Executive Director
Phone Number (856) 231-8500
Fax Number (856) 231-4664
E-mailast@ahint.com
Web Address: www.a-s-t.org

American Society of Transplant Surgeons
2000 L Street, NW, Ste. 200
Washington, DC 20036
Contact: Katrina Crist, Executive Director
Phone Number (202) 416-1858
Fax Number (202) 416-1744
Web Address: www.asts.org

American Thoracic Society
1740 Broadway
New York, NY 10019
Contact: Marilyn Hansen, Executive Director
Phone Number (212) 315-8700
Fax Number (212) 315-6498
Web Address: www.thoracic.org

American Urological Association
1120 N. Charles St.
Baltimore, MD 21201
Contact: G. James Gallagher, Executive Director
Phone Number (410) 727-1100
Fax Number (410) 223-4370
E-mailAUA@Interserv.com

Association of Organ Procurement Organizations
One Cambridge Ct.
8110 GateHouse Rd., Ste. 101 West
Falls Church, VA 22042
Contact: Daniel Whiteside, DDS, Executive Director
Phone Number (703) 573-2676
Fax Number (703) 573-0578

Center for Liver Diseases
1500 NW 12th Ave., Ste. 1101
Miami, FL 33136
Contact: Eugene Schiff, MD, Director
Phone Number (305) 547-5787

Children's Liver Alliance
3835 Richmond Ave., Ste. 190
Staten Island, NY 10312-3828
Contact: Lisa Carroccio, Chairwoman & Founder
Phone Number (718) 987-6200
Fax Number (718) 987-6200
E-mailLivers4Kids@earthlink.net
Web Address: www.liverkids.tk

Coalition on Donation
Post Office Box 2484
Richmond, VA 23218
Contact: David Fleming, Executive Director
Phone Number (804) 782-4920
E-mailflemingd@unos.org
Web Address: www.donatelife.net

Children's Organ Transplant Association, Inc. (COTA)
2501 COTA Dr.
Bloomington, IN 47403
Contact: David Speicher, Executive Director
Phone Number (812) 336-8872
Fax Number (812) 336-8885

Forum of ESRD Networks
1527 Huguenot Rd.
Midlothian, VA 23113
Contact: Denise Daly, Administrator
Phone Number (804) 794-2586
Fax Number (804) 378-7351
E-mailforum@richmond.infi.net

Hepatitis Foundation International
30 Sunrise Terrace
Cedar Grove, NJ 07009
Contact: Thelma King Thiel, Chairman and CEO
Phone Number (201) 239-1065
Fax Number (201) 857-5044

Insulin-Free World Foundation
750 S. Hanley Road, Ste. 360
St. Louis, MO 63105-2682
Contact: Deborah Butterfield, Executive Director
Phone Number (314) 727-4247, (888) 746-4439
Fax Number (314) 867-3713
E-mailinsulin-free@insulin-free.org, dbutterfield@insulin-free.org
Web Address: www.insulin-free.org

International Society for Heart and Lung Transplantation (ISHLT)
Suite 200
Addison, Texas 75001
Contact: Amanda Rowe, Executive Director,
Phone Number (972) 490-9495
Fax Number (972) 490-9499
E-mailISHLT@ishlt.org
Web Address: www.ishlt.org

International Transplant Nurses Society
Foster Plaza 5, Ste. 300
651 Holiday Dr.
Pittsburgh, PA 15220
Contact: Nancy Stitt, Executive Director
Phone Number (412) 928-3667
Fax Number (412) 928-4951

Joint Commission on the Accreditation of Healthcare Organizations
1 Renaissance Blvd.
Oak Brook Terrace, IL 60181
Contact: Dennis O'Leary, MD, President
Phone Number (708) 916-5600
Fax Number (708) 916-5644

Juvenile Diabetes Foundation International
120 Wall Street, 19th Floor
New York, NY 10005
Contact: James E. Mulvihill, D.M.D., CEO and President
Phone Number (212) 785-9500, (800) 533-2873
Fax Number (212) 785-9595

The Kidney Transplant Patient Partnering Program
An educational service of Roche Laboratories Inc.
Phone Number (800) 893-1995

Kidney and Urology Foundation of America
1250 Broadway, Suite 2001
New York, NY 10001
Phone Number (800) 633-6628
Fax Number (212) 629-5652
Web Address: www.kidneyurology.org

The Living Bank
P.O. Box 6725
Houston, TX 77265-6725
Contact: Bruce Conway, President/CEO
Phone Number (800) 528-2971
Fax Number (713) 961-0979
E-mailinfo@livingbank.org, bconway@livingbank.org
Web Address: www.livingbank.org

National Kidney Foundation
30 E. 33rd St.
New York, NY 10016
Contact: John Davis, Executive Director
Phone Number (212) 889-2210
Fax Number (212) 779-0068
E-mailjohnd@kidney.org
Web Address: www.kidney.org

National Minority Organ and Tissue Transplant Education Program (MOTTEP)
Ambulatory Care Center
2041 Georgia Ave., NW, Ste. 3100
Washington, DC 20060
Contact: Katherine Woods Erwin, MD, Executive Director
Phone Number (202) 865-4888
Fax Number (202) 865-4880

National Organization for Rare Disorders
P.O. Box 8923
New Fairfield, CT 06812-8923
Contact: Abbey S. Meyers, President
Phone Number (203) 746-6518, (800) 999-6673
Fax Number (203) 746-6481
E-mailnord@ix.netcom.com

National Transplant Assistance Fund
6 Bryn Mawr Avenue
P.O. Box 258
Bryn Mawr, PA 19010
Phone Number (800) 642-8399
Fax Number (610) 527-5210
E-mailNTAF@transplantfund.org
Web Address: www.transplantfund.org

North American Society for Dialysis and Transplantation
c/o Wadi Suki, MD
550 Fannin St., Ste. 1273
Houston, TX 77030
Contact: Wadi Suki, MD, Treasurer
Phone Number (713) 790-3275
Fax Number (713) 790-5053

North American Transplant Coordinators Organization (NATCO)
P.O. Box 15384
Lenexa, KS 66285-5384
Contact: Deidre Panjada, Executive Director
Phone Number (913) 492-3600
Fax Number (913) 541-0156
E-mailnatco-info@goAMP.com
Web Address: www.natco1.org

The Partnership for Organ Donation
2 Oliver St.
Boston, MA 02109-4901
Phone Number (617) 482-5746
Fax Number (617) 482-5748
E-mailinfo@organ-donation.org
Web Address: www.transweb.org/partnership

Second Wind Lung Transplant Association, Inc.
9030 W Lakeview Ct.
Crystal River, FL 34428
Phone Number (888) 222-2690
Fax Number (352) 563-0728
Web Address: www.2ndwind.org

Transplant Recipients International Organization, Incorporated (TRIO)
1000 16th St., NW, Ste. 602
Washington, DC 20036-5705
Phone Number (202) 293-0980, (800) 874-6386
Fax Number (202) 293-0973
E-mailtriointl@aol.com
Web Address: www.trioweb.org

Prescription Drug Assistance Programs

Patient assistance programs for the three most prescribed immunosuppressive medications are available by contacting:

Roche Patient Assistance Program (Cellcept)
Phone Number (800) 772-5790

Novartis Patient Assistance Program (Cyclosporine)
Phone Number (888) 455-6655

Novartis Transplant Reimbursement Information (Neoral)
Phone Number (877) 952-1000

Prograf/Fujisawa Patient Assistance Program (Prograf)
Phone Number (800) 477-6472

Abbott Patient Assistance Program (Gengraf)
Phone Number (800) 633-9110




This web site is intended solely for the purpose of electronically providing the public with general health-related information and convenient access to the data resources. UNOS is not affiliated with any one product nor does UNOS assume responsibility for any error, omissions or other discrepancies.
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