Financing a Transplant

Financial Resources Directory

Because many patients cannot afford to pay for the full cost of organ transplant surgery, or even a small insurance deductible amount, using their personal funds, it is common for patients explore other options to help them fund their procedure.

The following organizations may provide financial assistance to transplant candidates or recipients and their families. This is a sample listing and should not be interpreted as a comprehensive list or an endorsement. Ask your transplant financial team for the latest information or help.

Financial

Air Charity Network
4620 Haygood Road, Suite 1
Virginia Beach, VA
Phone Number800-549-9980
Web Address: www.aircharitynetwork.org
Transports ambulatory patients up to a distance of 500 to 700 miles using private pilots and their aircraft. Can transport people for transplant and follow-up appointments. Medical and financial need must be documented. Service is free of charge.

Air Care Alliance
2060 State Highway 595
Lindrith, New Mexico 87029
Phone Number888-260-9707
Fax Number888-572-9192
Web Address: www.aircareall.org
Provides the only central listing of all known groups whose members perform free public benefit flights for patient transport and other missions of public service.

American Kidney Fund
6110 Executive Blvd., Ste. 1010
Rockville, MD 20852
Phone Number800-638-8299
Web Address: www.akfinc.org

American Liver Foundation
75 Maiden Lane, Suite 603
New York, NY 10038-4810
Phone Number800-GOLIVER (465-4837)
E-mailwebmail@liverfoundation.org
Web Address: www.liverfoundation.org

Angel Flight
American Medical Support Flight Team
3237 Donald Douglas Loop South
Santa Monica, CA 90405
Phone Number 888-426-2643
Web Address: www.angel-flight.org
Provides free air transportation on private aircraft for needy people with healthcare problems and for healthcare agencies, organ procurement organizations, blood banks and tissue banks. No fees of any kind. Volunteers serving the public since 1983.

Children's Organ Transplant Association
2501 COTA Dr.
Bloomington, IN 47403
Phone Number800-366-2682

Georgia Transplant Foundation (GTF)
6600 Peachtree Dunwoody Road
600 Embassy Row, Suite 250
Atlanta, GA 30328
Phone Number 866.428.9411
Web Address: www.gatransplant.org
Provides both financial and educational assistance during a time that is often overwhelming for those undergoing or waiting for a transplant.

Levi Goff Support Foundation, Inc.
P.O. Box 237
Science Hill, KY 42553
Phone Number 606-423-1028
Provides financial assistance to pediatric multi-organ transplant patients.

Medicare Hotline
Phone Number800-Medicare (638-6833)

National Insurance Consumer Hotline
Phone Number800-942-4242

National Living Donor Assistance Center (NLDAC)
2461 S. Clark Street, Suite 640
Arlington, VA 22202
Phone Number 703.414.1600
This programs provides financial assistance to those who want to donate an organ, priority is given to individuals not otherwise able to afford the travel and subsistence expenses associated with living organ donation.

National Organization of Social Security Claimants' Representatives
Phone Number888-431-2804
Web Address: www.nosscr.org

National Transplant Assistance Fund
150 N. Radnor Chester Road
Suite F-120
Radnor, PA 19087
Phone Number800-642-8399
Fax Number610-727-0612
E-mailinfo@ntafund.org
Web Address: www.ntafund.org

National Foundation for Transplants
1102 Brookfield, Ste. 200
Memphis, TN 38119
Contact: Janice Hill
Phone Number800-489-3863
Phone Number901-684-1697
Fax Number 901-684-1128
E-mailinfo@transplants.org
Web Address: www.transplants.org

Patient Education and Advocacy

These organizations may be able to provide patient education and patient advocacy services.

American Association for the Study of Liver Diseases
6900 Grove Rd.
Thorofare, NJ 08086-9447
Contact: Susan Nelson, Account Executive
Phone Number 609-848-1000
Fax Number 609-848-5274
Web Address: www.aasld.org

American Association of Kidney Patients
100 S. Ashley Dr., Ste. 280
Tampa, FL 33602
Contact: Kris Robinson, Executive Director
Phone Number 813-223-7099
Phone Number 800-749-2257
Fax Number 813-223-0001
E-mailAAKPnat@aol.com
Web Address: www.aakp.org

American Diabetes Association
1701 North Beauregard St.
Alexandria, VA 22311
Phone Number 800-DIABETES (342-2383)
Web Address: www.diabetes.org

American Heart Association
7272 Greenville Ave.
Dallas, TX 75231-4596
Phone Number 800-242-8721
Web Address: www.americanheart.org

American Liver Foundation
1425 Pompton Ave.
Cedar Grove, NJ 07009
Contact: Alan P. Brownstein, President & CEO
Phone Number 973-256-2550
Phone Number 800-465-4837
Fax Number 973-256-3214
E-mailinfo@liverfoundation.org
Web Address: www.liverfoundation.org

American Medical Association
515 N. State St.
Chicago, IL 60610
Contact: Reed V. Tuckson, MD, Group Vice-President
Phone Number 312-464-5000
Fax Number 312-464-4184

American Organ Transplant Association
3335 Cartwright Road
Missouri City, TX 77459
Contact: Ellen Gordon Woodall, Executive Director
Phone Number 281-261-2682
Fax Number 281-499-2315

American Share Foundation
6464 Dempsey Ave.
Van Nuys, CA 91406-6015
Contact: John S. Abbott, President
Phone Number 818-781-1006
Fax Number 818-781-4113

American Society for Histocompatibility & Immunogenetics
P.O. Box 15804
Lenexa, KS 66285-5804
Contact: Debbie J. Elder, Executive Director
Phone Number 913-541-0009
Fax Number 913-541-0156
E-mailashiamp@aol.com

American Society of Minority Health and Transplant Professionals
P.O. Box 8324
St. Louis, MO 63132-0324
Contact: Tereasa D Parks-Thomas, President
Phone Number 314-991-1661
Fax Number 314-991-2805

American Society of Nephrology
1200 19th Street, N.W., Ste. 300
Washington, DC 20036-2422
Contact: Sherri A. Mara, Executive Director
Phone Number 202-857-1190
Fax Number 202-223-4579
E-mailSherri_Mara@dc.sba.com

American Society of Transplantation
National Office
15000 Commerce Parkway
Mount Laurel, NJ 08054
Contact: Libby McDannell, Executive Director
Phone Number 856-439-9986
Fax Number 856-439-9982
E-mailinfo@a-s-t.org
Web Address: www.a-s-t.org

American Society of Transplant Surgeons
2000 L Street, NW, Ste. 200
Washington, DC 20036
Contact: Katrina Crist, Executive Director
Phone Number 202-416-1858
Fax Number 202-416-1744
Web Address: www.asts.org

American Thoracic Society
1740 Broadway
New York, NY 10019
Contact: Marilyn Hansen, Executive Director
Phone Number 212-315-8700
Fax Number 212-315-6498
Web Address: www.thoracic.org

American Urological Association
1120 N. Charles St.
Baltimore, MD 21201
Contact: G. James Gallagher, Executive Director
Phone Number 410-727-1100
Fax Number 410-223-4370
E-mailAUA@Interserv.com

Association of Organ Procurement Organizations
One Cambridge Ct.
8110 GateHouse Rd., Ste. 101 West
Falls Church, VA 22042
Contact: Daniel Whiteside, DDS, Executive Director
Phone Number 703-573-2676
Fax Number 703-573-0578

Center for Liver Diseases
1500 NW 12th Ave., Ste. 1101
Miami, FL 33136
Contact: Eugene Schiff, MD, Director
Phone Number 305-547-5787

Children's Liver Alliance
3835 Richmond Ave., Ste. 190
Staten Island, NY 10312-3828
Contact: Lisa Carroccio, Chairwoman & Founder
Phone Number 718-987-6200
Fax Number 718-987-6200
E-mailLivers4Kids@earthlink.net
Web Address: www.liverkids.tk

Children's Organ Transplant Association, Inc. (COTA)
2501 COTA Dr.
Bloomington, IN 47403
Contact: David Speicher, Executive Director
Phone Number 812-336-8872
Fax Number 812-336-8885

Forum of ESRD Networks
1527 Huguenot Rd.
Midlothian, VA 23113
Contact: Denise Daly, Administrator
Phone Number 804-794-2586
Fax Number 804-378-7351

Hepatitis Foundation International
30 Sunrise Terrace
Cedar Grove, NJ 07009
Contact: Thelma King Thiel, Chairman and CEO
Phone Number 201-239-1065
Fax Number 201-857-5044

Insulin-Free World Foundation
750 S. Hanley Road, Ste. 360
St. Louis, MO 63105-2682
Contact: Deborah Butterfield, Executive Director
Phone Number 314-727-4247
Phone Number 888-746-4439
Fax Number 314-867-3713
E-mailinsulin-free@insulin-free.org
E-maildbutterfield@insulin-free.org
Web Address: www.insulin-free.org

International Society for Heart and Lung Transplantation (ISHLT)
Suite 200
Addison, Texas 75001
Contact: Amanda Rowe, Executive Director
Phone Number 972-490-9495
Fax Number 972-490-9499
E-mailISHLT@ishlt.org
Web Address: www.ishlt.org

International Transplant Nurses Society
Foster Plaza 5, Ste. 300
651 Holiday Dr.
Pittsburgh, PA 15220
Contact: Nancy Stitt, Executive Director
Phone Number 412-928-3667
Fax Number 412-928-4951

Joint Commission on the Accreditation of Healthcare Organizations
1 Renaissance Blvd.
Oak Brook Terrace, IL 60181
Contact: Dennis O'Leary, MD, President
Phone Number 708-916-5600
Fax Number 708-916-5644

Juvenile Diabetes Foundation International
120 Wall Street, 19th Floor
New York, NY 10005
Contact: James E. Mulvihill, D.M.D., CEO and President
Phone Number 212-785-9500
Phone Number 800- 533-2873
Fax Number 212-785-9595

The Kidney Transplant Patient Partnering Program
An educational service of Roche Laboratories Inc.
Phone Number 800-893-1995

Kidney and Urology Foundation of America
1250 Broadway, Suite 2001
New York, NY 10001
Phone Number 800-633-6628
Fax Number 212-629-5652
Web Address: www.kidneyurology.org

The Living Bank
P.O. Box 6725
Houston, TX 77265-6725
Contact: Carole Keeney Harrington, President/CEO
Phone Number 800- 528-2971
Fax Number 713-961-0979
E-mailinfo@livingbank.org
E-mail bconway@livingbank.org
Web Address: www.livingbank.org

National Kidney Foundation
30 E. 33rd St.
New York, NY 10016
Contact: John Davis, Executive Director
Phone Number 212-889-2210
Fax Number 212-779-0068
E-mailjohnd@kidney.org
Web Address: www.kidney.org

National Minority Organ and Tissue Transplant Education Program (MOTTEP)
Ambulatory Care Center
2041 Georgia Ave., NW, Ste. 3100
Washington, DC 20060
Contact: Katherine Woods Erwin, MD, Executive Director
Phone Number 202-865-4888
Fax Number 202-865-4880

National Organization for Rare Disorders
P.O. Box 8923
New Fairfield, CT 06812-8923
Contact: Abbey S. Meyers, President
Phone Number 203-746-6518, 800-999-6673
Fax Number 203-746-6481
E-mailnord@ix.netcom.com

North American Society for Dialysis and Transplantation
c/o Wadi Suki, MD
550 Fannin St., Ste. 1273
Houston, TX 77030
Contact: Wadi Suki, MD, Treasurer
Phone Number 713-790-3275
Fax Number 713-790-5053

North American Transplant Coordinators Organization (NATCO)
P.O. Box 15384
Lenexa, KS 66285-5384
Contact: Deidre Panjada, Executive Director
Phone Number 913-492-3600
Fax Number 913-541-0156
E-mailnatco-info@goAMP.com
Web Address: www.natco1.org

The Partnership for Organ Donation
2 Oliver Street
Boston, MA 02109-4901
Phone Number 617-482-5746
Fax Number 617-482-5748
Web Address: www.transweb.org/partnership

Second Wind Lung Transplant Association, Inc.
9030 W Lakeview Ct.
Crystal River, FL 34428
Phone Number 888-222-2690
Fax Number 352-563-0728
Web Address: www.2ndwind.org

Transplant Recipients International Organization, Incorporated (TRIO)
1000 16th St., NW, Ste. 602
Washington, DC 20036-5705
Phone Number 800-874-6386
Phone Number 202-293-0980
Fax Number 202-293-0973
E-mailtriointl@aol.com
Web Address: www.trioweb.org

Prescription Drug Assistance Programs

Patient assistance programs for prescribed immunosuppressive medications are available by contacting:

Roche Patient Assistance Program (Cellcept)
Phone Number 800-772-5790

Novartis Patient Assistance Program (Cyclosporine)
Phone Number 888-455-6655

Novartis Transplant Reimbursement Information (Neoral)
Phone Number 877-952-1000

Astellas Patient Assistance Program (Prograf)
Phone Number 800-477-6472

Abbott Patient Assistance Program (Gengraf)
Phone Number 800-633-9110




This Web site is intended solely for the purpose of electronically providing the public with general health-related information and convenient access to the data resources. UNOS is not affiliated with any one product nor does UNOS assume responsibility for any error, omissions or other discrepancies.
Related Topics

You may also want to learn about:


Trasplantes Y Vida Web site